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Views wanted on end-of-life services

We want to hear about your experience of end-of-life care.​
Information about the care received by terminally ill people is being sought to improve end-of-life services.

South Devon and Torbay Clinical Commissioning Group (CCG), responsible for the majority of health care in the area, has launched a survey to gain a wide understanding of people’s experience of end-of-life or palliative care.

The survey is open to carers, relatives or friends of anyone who recently passed away, or patients and anyone who knows someone receiving end-of-life care.

Dr Nick D’Arcy, the CCG’s clinical lead for patient safety and quality, said: “Through people’s feedback, we know that end-of-life care can vary greatly across our area, so the purpose of the survey is to get a broader view of the issues.

“We want to hear about what the care was like for patients, their relatives and family members, and whether people felt that they had capacity to ask questions or voice concerns. We also want to know the extent to which dignity, compassion and respect was demonstrated.”

Based on the responses given, the results will feed into the work of the End of Life board and improvements will be taken forward.

The survey is anonymous, so responses will not be attributed to individuals, even if they give contact details.

Dr D’Arcy added: “We appreciate that it can be a hard subject to talk about, which is why any insight people can give us is so valuable in helping to make services as good as they can be.

“The information will assist in removing variation in care so that we can commission services that meet the needs of patients.”

The survey runs until 1 April 2017, with the results published shortly afterwards. A paper copy can be requested by calling 01803 652 578 or emailing patientfeedback.sdtccg@nhs.net​.