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Dignity in death

People’s experiences of end-of-life care in Devon

From October 2016 to April 2017, South Devon and Torbay CCG and Northern, Eastern and Western Devon CCG ran a survey asking for people’s experience of end-of-life care. It was open to patients receiving end-of-life care and to carers, relatives and friends of someone who had recently passed away or was receiving end-of-life care.

The purpose of the survey was to seek people's experiences of end-of-life care and see if they felt patients were treated with dignity, compassion and respect. One hundred and fifty-five responses were received, and that information has now been collated in a report: Dignity in death.

The report also makes a range of recommendations for improving end-of-life care, based on the comments received. These include: specific end-of-life training for all frontline staff in Devon; standardised Devon-wide literature to set people’s expectations around what happens when someone dies; longer opening hours and wider promotion of bereavement services; and ‘bereavement suites’ in acute hospitals, to provide a private space for people who have recently lost a loved one.

Dignity in death: People's experiences of end-of-life care in Devon

The report's recommendations have been given to the end-of-life strategic boards in Devon, and developments will be monitored by the CCGs’ patient experience teams. An update on the actions will be provided in January 2018.